When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families
Author: Marilyn J Field
"When Children Die examines what we know about the needs of these children and their families, the extent to which such needs are - and are not - being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, strengthening the organization and delivery of services, reducing financial barriers to care, developing support programs for bereaved families, training health professionals, expanding the knowledge base to guide clinicians and families, and more. It argues that taking these steps will improve the care of children who survive as well as those who do not - and will likewise help all families who suffer with their seriously ill or injured child." Featuring illustrative cases, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
Table of Contents:
Preface | ||
Acknowledgments | ||
Reviewers | ||
Summary | 1 | |
1 | Introduction | 19 |
2 | Patterns of Childhood Death in America | 41 |
3 | Pathways to a Child's Death | 72 |
4 | Communication, Goal Setting, and Care Planning | 104 |
5 | Care and Caring from Diagnosis Through Death and Bereavement | 141 |
6 | Providing, Organizing, and Improving Care | 180 |
7 | Financing of Palliative and End-of-Life Care for Children and their Families | 234 |
8 | Ethical and Legal Issues | 293 |
9 | Educating Health Care Professionals | 328 |
10 | Directions for Research | 350 |
References | 392 | |
App. A | Study Origins and Activities | 445 |
App. B | Prognostication Scores | 449 |
App. C | Assessing Health-Related Quality of Life in End-of-Life Care for Children and Adolescents | 476 |
App. D | Cultural Dimensions of Care At Life's End for Children and Their Families | 509 |
App. E | Bereavement Experiences After the Death of a Child | 553 |
App. F | End-of-Life Care in Emergency Medical Services for Children | 580 |
App. G | Education in Pediatric Palliative Care | 599 |
App. H | Progress in Pediatric Palliative Care in New York State - A Demonstration Project | 638 |
App. I | Committee Biographical Statements | 665 |
Index | 671 |
Go to: Changing Lanes in China or Making Career Decisions That Count
The Healthy Boomer: A No-Nonsense Midlife Health Guide for Women and Men
Author: Peggy Edwards
In North America, some eighty-eight million boomers are facing the physical and personal challenges of midlife. But midlife can also be a time of tremendous vitality, confidence, and joy.
In this comprehensive guide, three experts in midlife health draw on interviews, the latest research, and their own expertise to help men, women, and couples on the journey from midlife turbulence to midlife mastery.
The Healthy Boomer provides easy-to-use decision-making tools, accurate information, and practical advice on such topics as:
The male and female menopause; how to make a decision about hormone replacement therapy; alternative health care; preventing heart disease, cancer, and osteoporosis; prostate health and impotence; healthy relationships and great sex in midlife; anti-aging techniques; weight control, exercise, and healthy eating; the importance of spiritual well-being; handling midlife stress; what to do if you can't remember names any more.
For the many North American boomers who are experiencing midlife challenges, The Healthy Boomer is required and reassuring reading.
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